Turns out my life is over at 14 (Update)
To those amazing people who saw my post around a month ago thank you all so much, the post got so much recognition and I got so many helpful comments. This is an update to that post, which will detail all the information I have gained over the past month. Firstly, things have gotten much, much worse, the doctors who I was planning to see have waiting times of up to 2 months per appointment. I am steadily getting more and more unwell, recently I’ve tried a histamine detox and I’ve been feeling worse than I have in a very long time. I’m sleeping 18 hours a day, not even eating one meal and my personal hygiene has gone to shit. It’s to the point that I’m too exhausted to brush my teeth, and with my messed up sleep schedule I’m barely showering as well, normally once a week for a shower and once a day for my teeth. But all of that has been happening for a while. Over the past month a lot has happened regarding my education, I’m required by law to provide notes or some kind of proof from a doctor that I’m in the condition I’m describing, the only issue with this is that the NHS refuses to give out letters and as I stated the private doctors can take months at a time for me to see them. Due to this I’m having to do something called section 19, where apparently a government person comes over to my house and teaches me. The only issue with that is that I don’t know if I have enough energy to concentrate for an hour straight, and if the section 19 doesn’t work then I don’t know what will happen. I’m stuck in a loop of feeling worse, needing to see doctors for the government and myself, and needing to prove that I’m ill but I don’t have the recourses to do that. I’m seeing a psychiatrist to prove that I’m not doing this out of pure mental instability or some bs, but I’m finding out that I’m much worse off that I thought I was mentally. When I think back on it, I’ve been feeling somewhat suicidal for the past few months, I’m also most likely severely depressed as I haven’t been able to see my friends in months and obviously feeling like this isn’t amazing. For those who don’t know what I have, I have MCAS, long covid, ME/CFS, POTS and EDS, that’s the short list at least. But overall throughout the past month it’s become more clear that I’m in a much more dire position than I thought, I’m steadily getting more ill, I need to apply myself to school and my mental state is bad. I don’t know if anyone will even see this post, but if one more bad thing happens to me it might be the end of me. I don’t need help in the comments, I’m just using this as a diary/update to the previous post, I’ll try and do another one maybe in a month’s time. But if anyone has questions please feel free to ask and I’ll try to reply. Thank you all for the support on the last post.